Yes I have MS But...

This Page is for Family and Friends of People with MS.This page was written during a bad relapse and as most of us do, we complain about MS.

I decided to complain in writing. This is not to be taken seriously, it was written in a joking, sarcastic manner.

Deann WalterHello, My Name is Dee and I have MS. I was diagnosed November 7th, 2000 (Election Day). I use Tysabri and have done so for almost 14 years now. I was in the clinical trial for Avonex + Tysabri and was luckily on the real thing during the trial. I have been relapse free since I started Tysabri and have had no changes on my MRI as well.

I used to be a patient advocate Biogen doing patient programs about my experience with Tysabri. I met David Lander (Squiggy) at one of the conferences I did. He was a guest speaker as well. He had just started taking Tysabri and asked me if he could pick my brain a little since I have been on it so long.

I run the Frederick County MS Support Group. I have a great bunch of people in my group. I enjoy seeing them every month. For fun I've started taking guitar lessons and going to concerts which I never thought I would do again considering all the walking.... no - great parking and great seats for people with disabilities. I've met a few celebrity singers along the way. The one that sticks in my mind the most is Jason Aldean, I gave him some of my guitar pics that have a bumpy grip on them and he looked at me and said "is this brail". He and his band were riding around on these fast two wheel scooters and just decided to pull up to my car as we were unloading. At the end of the concert he made sure I got his actual guitar pic (not the ones made to throw out to the audience) for my lessons.

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